Support Registry Update

5 Months Inpatient ❤️‍🩹 Update & Big Prayer Request 🙏🏽

In support of
Oakley Werley’s Miracle Heart
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Today marks 5 months here at Dell Childrens Hospital waiting on Oakleys miracle heart. It’s been 5 months since I have been home to New Braunfels… 5 months of living in unknowns hoping today is the day we could get the call. 5 months of switching back and fourth with Braden trying our best to still take care of Kash and divide our time with Oakley. When Oakley was initially admitted they told us that the average wait time for her age is 4-6 months… we just never could have imagined how hard this would be. Our home sits empty yet the bills continue…

It’s nearly impossible to work and be present to advocate for your child. It’s unfortunately a very broken system. I never would have imagined being of a leave of absence from work for this long… I am so blessed that they have been so understanding with our situation but financially speaking it is not easy. I believe that God always provides and he has proven that to us thus far. Without the support of our family and friends I could have never been on a leave of absence for this long. Your support has allowed me to fully be with Oakley these last five months and for that I am forever grateful 🙏🏽❤️ 

I do have one big prayer request today… Oakley had a chest x-ray yesterday and her doctor let us know that she is retaining a lot of fluid and her heart is now much bigger than on her previous x-rays. They are going to start her on IV Lasix in hopes this will resolve the fluid retention. All of this is likely due to the worsening of her heart failure. Please please pray that the IV Lasix works and that Oakley remains strong and stable in the waiting. 🙏🏽 

I know God has big plans for Oakley… her presence alone lights up an entire room. I couldn’t be more proud of her. She has handled all of this so incredibly well and everywhere she goes she is just so loved. There is nothing more I could ask for as a mom than that. Your prayers mean the world to us and I believe they are huge part of our story. Thank you for constantly lifting us up, giving us strength, and showing our family so much love. I can’t imagine going through this without it. My daily reminder is Gods timing is always perfect 🙏🏽 I am filled with so much gratitude ❤️ 

Kennidi Werley
5 months ago

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Comments

Agibson

Thanks for the update. Continued prayers for Oakley and your family. I can't even begin to imagine what you all are going through. But with God all things are possible. He is a healer. His timing is perfect even when it really doesn't seem like it. Just hold on to Hope and your Faith! God doesn't give you more than you can bear. Sometimes the worst will seem to happen before a breakthrough comes and it's just around the corner! Hang in there.
  • 5 months ago

Elizabeth Hollins

Praying for Oakley, your family, the medical team, and for the heart you are so desperately waiting for. Sending hugs to you and Oakley as you wait.
  • 5 months ago

Brenda Beyer

I can not even imagine how hard it is
Praying for all of you
For patience strength for God to reach down and put His arms around you
  • 5 months ago

Jazmin Guzman

Continued prayers for Oaks and your whole family! ♥️🙏🏽
  • 5 months ago

Melanie Furland

I have prayed for Oakley and will continue to do so. Thanks for the updates. You don’t know me, but I knew your mom in college.
  • 5 months ago

Rhonda Jaenicke

Dear Werley family - You don't know me, but I am Tyler Jaenicke's mom from West Michigan. Ty and Syd have shared your journey with us. As a mom of three boys, two of whom have received the most selfless gift of heart transplants, I can feel every emotion you are going through. I believe the power of prayer helped guide us through the very darkest of days. I am holding your family and beautiful Oakley close in my heart with prayers for strength during the most unbearable days. I have learned God's timing is always perfect and I pray for a miracle to happen soon for little Oakley. ♥️
  • 5 months ago

Sallypost

Continued prayers for all of you! And also for the Lasix to work!!!♥️
  • 5 months ago

Triciahassell

We are praying for sweet Oakley and your family everyday and will continue to do so. We are believing and declaring for Oakley’s miracle heart and know that God has amazing plans for her life. You are a pillar of strength and a beacon of light for your family. A true inspiration to so many people with your strong faith! We love you all!
  • 5 months ago

Ashlee Morton

Praying for Oakley and your family in such a hard time for you all. X
  • 5 months ago

Jennifer Caro

God is the doctor of all doctors. I will pray for Oakley tonight and in the name of Jesus , those X-rays will be better and she will get that heart transplant. God bless
  • 5 months ago

Esme J

Your so brave oaks love you!!! I have been praying every day and night for you!!!
  • 5 months ago

Daniellerotchill34

I'm new to ur page, I just want to say that I'll be praying everyday for Oakley
  • 5 months ago

Mario Cortes

Thank you for the update. We are friend of Mrs Escudero. From LA we are sending you prayers and hugs. We pray that God fix Oakley's well-being. If you ever need someone to chat do not hesitate to contact us mariorcortes@gmail.com, my son Matthew was born 21 years ago with a congenital heart disease and we went through a lot of ups and downs that might be valuable. God Bless You. Stay faithful, stay strong. Love Cortes Family
  • 5 months ago

Cindra Janusz

Continue prayers to cover Oakley and your family! Lord please help Oakley to accept the IV LASIK and that it helps rid her heart of the fluids that burden her heart and breathing! Amen
  • 5 months ago

Mimi Blankenship

Praying for sweet Oakley and you and Braden for strength beyond your own power- and for Kash to be surrounded with love and comfort too. I know you haven’t gone this far to not go all the way. God is making a way. Love and hugs to you Kennedi.
  • 5 months ago
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