It’s been almost 6 months since Oakley was listed for a heart transplant. 135 of those days have been spent at Dell Childrens Hospital… It’s hard to believe we’re still here. I was so hopeful she would get her miracle long before this. The waiting is just a constant heart ache. I have to constantly reframe my thinking and remind myself that Gods timing is always perfect and His plans are always good even when I can’t see it or don’t understand. I haven’t been home since February because I can’t walk into our house without Oakley. My heart is where she is. Kash and Braden are also now full time here in Austin so we can be together as much as possible and keep some “normalcy” when in reality nothing about this situation is normal. It’s a divide and conquer mind set and pray you can keep your head above water while trying to advocate daily for your sick child. We truly couldn’t do this without the support of those around us… it’s impossible to get through this alone. The words thank you will always fall short but your prayers are everything to us. We feel them and most importantly I know Oakley feels them because she talks about her love for Jesus all the time. She is full of joy daily. That’s God. So thank you 🙏🏽 We just want nothing more than to be home together and can't wait for that day to come ❤️