First I want to start by saying happy Friday (: Fridays here in the hospital don't feel much different than any other day BUT on the weekends Braden, Kash, Oakley and I are all together and that is what we look forward to all week! I also wanted to thank YOU for your constant love and support, and thank you for loving our sweet Oakley.

113 days listed for heart transplant and 76 days inpatient. We are definitely tired BUT we fight for joy every single day, and by the grace of God we find it. We find it in Oaks catagious laugh, we find it watching Kash sprint to Oaks and I every weekend, we find it in the all the precious moments we get to spend as a family... free from wordly distractions and having time we never had before. I will be forever grateful for this time. 

Thank you for all your prayers, I promise I feel them. We woud never have this much peace, joy, and strength without the love of our Lord and Savior, Jesus Christ. He carries us through. The work God is doing in Oakley is undeniebale. She loves her Jesus. 

Today, Braden and I had a care conference with the transplant team to ask any questions we had and also discuss Oakleys current health. Oakley is still having her abnormal heart rythms often and her meds have been increased to try to get them under controll. She is no longer eating much at all by mouth however, this is expected with heart failure. She is getting almost 100% of her nutrition through her gtube.

The team let us know today that there have not yet been any offers that would match with Oakley. Her blood type is O+ so she needs an O+ heart. This can make the wait longer...

Oakley was also recently diagnosed with stage 2 kidney disease... this needs to be closely monitored once she does receive her miracle heart because she will be on antirejection medication/immunosuppresants which can also effect her kidneys.

Oaks asked to go home today... that part it just hard. I hate this for her. I wish she was able to be a normal six year old, running around and having fun with her friends. Right now this feels like forever but this too shall pass.

The Lord is close to the brokenhearted
    and saves those who are crushed in spirit. -Psalm 34:18

Specific Prayer Request:

-Prayers for Oakleys health... God please keep her well and strong.  Prayers that she continutes to tolerate her gtube feeds and continues to gain appropriate weight. (This is so important for her recovery) 

-Prayers for our family to only become closer and stronger during this time

-Prayers for the donor and their family, an unimaginable loss... and our families worse nightmare. The selfless decision... and Oakleys miracle. 

From one tired mom, thank YOU! I am so incredbily grateful for all your love.