101 days in the hospital...100 days listed 1A.

Mentally it is getting harder everyday. The constant beeping, daily rounds with the doctors, vitals every 4 hours, the pokes, medications, feeds, blood work, procedures, x-rays, echos... 

Oakley endures so much. We are so ready for her to get her miracle. She is so ready. 

Finding a response to "mommy when am I going to get my heart?" - that's hard.

Saying goodbye to your daughter as they roll her back for yet another procedure - that's hard.

Listening to Kash pray "God please let Oakley get out of the hospital" - that's hard. 

The daily disruption of our life as a family - that's unexplainable. 

The waiting is hard. Please Lord. Please give Oaks her miracle 🙏🏽 we pray for her beautiful donor everyday. The most selfless decision a parent could ever make. The words "thank you" will never do justice. A true miracle. ❤️

Your love and support has carried us this far and brought us so much light. We are forever grateful for the most amazing support system behind us. 🙌