Support Registry Update

Surgery update

In support of
Ethan, our Superman!
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Well we can all finally take a breath. Our strong, brave, adorable heart warrior is coming out of surgery. Jaron and I just met with the surgeon and he said Ethan did great with the best possible outcome. The doctors are closing him up and it will take time for him to come out of anesthesia and we will be able to see him around 2:30/3 in the CICU.

Medical updates - Everything went as expected. No surprises. Mitral valve looked great. Aortic valve is symmetric despite being a two leaflet valve (typically people have a 3 leaflet valve). They opened the leaflets slightly, and the valve functions very well and should last him a very long time. The tissue below the valve which was restricting flow was removed along with a trimming of some muscle in that area which contributed to the growth of this tissue. All-in-all this was a very good outcome.

Mommy is staying with Ethan tonight and he will likely sleep a lot. We are hoping they can take out the breathing tube today, but should know more over the next few hours. 

Thank you again for all of your love  and support. We needed it more than you know.

Xoxo 


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Comments

Thomas Leflein

AMEN 🙏
THANK GOD HES DOUNG GREAT
  • 3 months ago

Jason Crouse

Hell yeah!
  • 3 months ago

Jackarogeti

Wonderful News, Brooke !! So glad to read this. Thank you so much for sharing updates. What a Super family. God bless you all, especially inspiring, young brave warrior, Super Ethan.
  • 3 months ago

Susan Kramer

Excellent news!!! Soooo happy for you all!! Ethan is a heart warrior for sure! Love the pics you took of him!! Give him a huge hug from us. ❤️❤️❤️
  • 3 months ago

Pam Lazarus

Great news!! XO
  • 3 months ago

Vicki Sawyer

Great news! What a warrior! 💕
  • 3 months ago

Melissa Friebe

Such awesome news for you and superman. Love to you all. His is good
  • 3 months ago

Kathleen Mantz

Ethan is such a little warrior. Glad everyone can take a breath now. Sending you all so much love!
  • 3 months ago

Gaby Alesi

Wonderful news!! So happy for you all! Love you guys bunches ❤️
  • 3 months ago