Support Registry Update

Day 6 - Best News

In support of
Ethan, our Superman!
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Friends & Fam, 

The news we have all been waiting for...WE CAN LEAVE THE HOSPITAL TOMORROW! We can't explain how proud we are of Ethan and how well he has handled all of this. He has been beyond brave, had the best attitude, made friends with all the nurses, and just the sweetest little Bubba. 

He got out of bed on his own today and insisted walking around the floor without help. We even had to tell him to slow down! He walked down to a different floor for X-rays and practiced going up and down stairs. It may not seem like a big deal, but after open heart surgery and not moving much the past few days, this is awesome!

He went to the playroom and made a trick or treat bag and had so much fun doing it (see picture attached). 

We aren't sure when we will come home from Boston, but happy to get out of the hospital! We will leave with some meds that he will need to take over the next few weeks for blood pressure and Aspirin for pain. He will have restrictions on activities and carrying anything for about 5-6 weeks and his incision still needs to heal. 

Thank you to our village for EVERYTHING! The outpouring of love, support, and help while we are gone is just incredible. We truly could not have gotten through this without all of you! 

xoxo
Brooke & Jaron 

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Comments

Sara Kandel

Best news ever! Go Ethan!!!
  • 3 months ago

David Diamond

You rock Ethan!! Keep up the good work!!
  • 3 months ago

Marilyn Kaufman

Thank you for sharing this great news; I have tears of joy! Seeing Ethan with his beautiful smile is inspiring and I’m so relieved and thankful for your wonderful update and positive attitudes! Brooke, Jaron, and Ethan- you guys are all super heroes to us!
  • 3 months ago

Gaby Alesi

Wonderful news!!! Way to ETHAN!!!!
  • 3 months ago

Amy Mittelberg

Best news!!!
  • 3 months ago

Susan Kramer

SOOO HAPPY FOR YOU, JARON AND ETHAN!!! BEST BUBBA EVER! ❤️❤️❤️
  • 3 months ago

Sarah Russell

This is fantastic news! What a strong, brave boy he is!!! His smile is everything. Thinking of you three and your parents and sending our love.
  • 3 months ago

Pam Lazarus

Wow!! He is amazing and so beyond adorable. Can't stop thinking about you guys. Sending positive thoughts and prayers to all of you. I'm sure this has all been quite the journey for everyone. Sending lots of love too!!
  • 3 months ago

Shira Cavanaugh

Yay!!! Sending hugs and kisses to all of you 💕
  • 3 months ago