I wanted to give an update on Landry while we have a little bit of quiet time, if I even dare say that out loud and risk jinxing it...

Landry has been more alert today, which has been nice to see and definitely encouraging, but she's also been quite a bit more uncomfortable.  She got heavy IV steroids yesterday and today to help reduce inflammation in her lungs and open her airway; unfortunately, asthma flare ups when she's sick add another element to her body's already complex responses to illness.

The steroids seemed to help, though, and tomorrow we will start a course of oral steroids and hope they continue to work as well. Her overnight oxygen needs stayed the same as the night before and we were able to wean her off a little daytime oxygen today, which is also encouraging. 

Feeding wise, we've been working our way up on continuous pedialyte feeds to her g-tube and work our way down on IV fluids. It's a delicate balance to keep enough moving through the gut that it doesn't shut down (this happened last year and it was awful), but not going so fast that she has trouble tolerating it.  

This afternoon we got her to maintenance fluid rate through her g-tube and were able to stop IV fluids.  Tomorrow's goal will be to transition her to half pedialyte/half formula feeds continuously and then work from there to get her to full formula.

Some labs following the GI bleeding are still trending down, but not as drastically as they were early on and are still in a safe spot currently.  It looks promising that we can manage without a transfusion, but unfortunately, she is still too sick and risky to be able to look further for any sources of the bleeding.

A room opened up at the Ronald McDonald House today, sooner than expected, so we were able to come off the wait list and check in.  I'll continue to sleep at the hospital, but it will be nice to have a quiet place to rest when Pete is at the hospital during the day. Leaving is hard for me, but hopefully still being on hospital grounds will make that a little bit easier. I'm really thankful we have that option. 

Thanks for all the prayers and encouragement this week and continuing to pray.  It's never fun to be inpatient or see Landry so sick (especially so far from home), but if it has to happen, we definitely always feel loved and supported and that's special.  

Hopefully things continue to move in the right direction, on Landry's schedule, of course ;) and I'll update as I'm able to.  

Lindsay