Started Dipg Vax Trial 5/8/24! 

Sebastian received his first treatment of the rHSC-DIPGVax with combination of balstilimab & zalifrelimab trial at CHOC yesterday. The only side effect was a little stuffy nose, some fatigue and some redness around where the vaccine was given. Other than that Sebastian feels great. Hes the first kid getting all 3 treatments of this trial. Hopefully leading the way for many more children.  

May 22nd will be his second treatment. Praying this is our answer and Sebastian continues to thrive with this treatment. God is with us and sees our fight. Please Continue to pray for our family. 
We are so grateful for everyone who shares Sebastian's journey, Ktla, Luna everglow foundation & The Mirror US and everyone who helps bring awareness to DMG/DIPG. 🙏🏼🩶🎗️