Well it's officially one month since Sebastian started rHSC-DIPGVax Clinical Trial at CHOC. So far It's going very well. Sebastian is officially being winged off of steroids and is down to 0.5mg every other day and praise report he is getting No headaches. 🙌🏻 and His Labs on 6/5/2024 are ALL in Normal Range! 😆 We will celebrate every win and take in all the positive signs we get in this trial. 

Sebastian feels really great 🙏🏼 he does have some side effects though such as seelling at injection sight on his arm that usually lasts 5 days after treatment it is very sore. Sebastian currently can't look up due to edema and possibly the Tumor. Praying this will get better as edema goes down from radiation 🙏🏼 

Keeo Praying for my boy! Everyday is so special and a gift. We are so grateful for our CHOC Team, Sebastian's absolutely loves them. He was interviewed this week by Seacrest Studios at CHOC he's excited for all the kids in the hospital to see him and hopes he makes them all laugh and know that he is rooting for every child battling cancer. We see you, we love you. ❤️🎗️

Next MRI will be on July 1st! Please pray we see no progression and Sebastian's kicking this tumors ass!