Hello friends, family, supporters, and prayer warriors! This update is long, may be everywhere and I'm sorry if all my thoughts and all the information comes out scattered.

Tuesday, May 28, 2024, we had a day full of all the final pieces needed to submit to the clinical trial study. One of these appointments included seeing the oncologist and reviewing Paisley's post surgery MRI. Unfortunately, we were quite disappointed to learn that the surgery did not debulk as much of the tumor as the neurosurgeon thought. (Once he's in there he doesn't exactly have "margins" to guide him.) We initially thought 1/3-1/2 of the tumor was removed but the measurements pre and post surgery were not substantial by any means. There was SOME removed but I fear that may open up the possibility of needed another surgery later on. {Mental note: pre surgery measurements were 3.9cm x 3.5cm x 3.7cm and post surgery measurements were 3.5cm x 3.5cm x 3.0cm} We are praying and begging that won't be the case... but for now we trust God and focus on treatment. 

As I said, all the tests and labs and all was done on the 28th so that the doctors could get all the "behind the scenes" together to submit Paisley as part of the trial this morning. (Friday, May 31, 2024) After they received everything needed, she would be randomized to either "arm 1" (Chemotherapy) or "arm 2" (Selumetinib/ pill therapy). 

Well, I got a phone call this morning from the doctor. We start treatment Tuesday, June 4, 2024, but we DO NOT have to have the port surgery because we will NOT be doing chemotherapy. Paisley was randomized to get the pill!!! Treatment will be longer and it'll be my responsibility to monitor for ANY signs of ANYTHING basically 😅but honestly this was the choice we prayed for. I ask that you all pray with me that the side effects are minimal and manageable and that this medication works to shrink the tumor. If at any point in time the tumor grows we will stop this medication and try chemotherapy. But we are very happy that the fear of having a port is not something we have to continue to think about right now.

We are officially out of school and kicking off summer with a surprise weekend trip before we start treatment. Once treatment starts Paisley will need to be kept to minimal sun exposure to lower the chances of negative side effects just like chemotherapy. Pray for amazing memories, safe travels, and my emotions to hold it together in front of her.

Also, (sorry it's all scatterbrained) we have a date and venue for the benefit pageant for Paisley set and we are hoping for a crowd of support! I will attach the cover page for it here and please feel free to send me a text/fb message or email if you want to participate or donate. (Also still a surprise for her so shh 🤫) sadieteague95@gmail.com

We also have bracelets ready to go for a minimum donation of $5. 

All of the donations are going to a Visa card that we use for gas, food expenses while traveling to/from appointments or while in the hospital, and the rest we are saving for hopefully a trip to Disney next year as that's been Paisley dream vacation since she was 2.5 years old and seen a commercial about it. 

Thank you guys for hanging with me through this update as well as this whole journey. Please know your prayers, thoughts, gifts, and positivity is well felt and appreciated. Feel free to send me a message with any questions, feedback, or thoughts.

And if anyone sees this through this website that is going through or has gone through something similar, please feel free to reach out! I had one lady do so and it was nice having someone who has been through something similar to chat with! 💕

As always, we love you guys and God bless! 🩶🎗️🩶