Hello friends, family, supporters and prayer warriors. Thank you guys for sticking with us through it all. The support and prayers have meant the world to us. 💕

We had a follow up appointment in Levine's yesterday to discuss how things have been since starting treatment. The side effects haven't been fun and it's been a mental challenge trying to help Paisley when there's literally nothing different we can do. I know you guys will ask so I'll spare you and just tell you what those side effects are.
- She started breaking out on her nose and it spread throughout the 'T zone' of her face. It got very red and irritated and she said the bumps burned. I went and got her some face wash and thankfully it was the exact brand that the Dr recommended we get. It has since 'calmed down' and started peeling so he sent in a prescription cream to use as well. 
- Paisley also gets very hot very easily and without a 'real reason' as to why. I purchased one of those $50 blow up pools to put on our porch and she has been in it as much as possible. The Dr doesn't have a real reason as to why this is happening. 
- She normally gets nauseous in the mornings after her medication. We believe it's from taking iron on an empty stomach so we have discontinued the iron for now. 
- Another thing we have been watching is that her weight has steadily increased since her brain surgery. I asked his thoughts on it and if we need to pull in endocrinology to get their thoughts as well. I am having a hard time knowing what her 'normal' should be. She's almost 8 but her body thought she was 10.5 towards the beginning of the year. The Dr agreed and seems very disappointed that we are dealing with this. He believes it's from her hypothalamus and could be from her surgery itself. The first steps to deal with this are dietary changes. I have vowed to do these changes with her and also to implement them with the boys. I ask that anyone who watches the children also follow the changes and not give them things that are no longer allowed. It's gonna be a journey but we can do it!

Paisley and I are going this afternoon to get haircuts in hopes it helps her cope with the 'hotness' she's feeling as well as the tenderness of her scalp while brushing her hair. Shorter hair = less tangles = less pulling = less pain... we hope. 

Moving on.. We are looking forward to the pageant this weekend and I have managed to keep it a surprise from Paisley this whole time!! I am SO excited to see her face when she realizes what is going on! We will have shirts available with a $20 donation (+5 for 2XL and up) and bracelets available with a $5 donation. We will also have a preorder for shirts there if your size is not available.

Oh.. and another thing. I didn't think this had to be said but I know sometimes it's just a normal thing for others. If you or a member of your immediate family have any symptoms of any sickness, or if you know you've been exposed closely to people sick, please please please refrain from visits. I know kids get sick and it may just be allergies for you but we are very much in chemo treatment. It may be pill therapy but this is still a form of chemo and it can and will weaken her immune system. A simple 100.4 fever lands us in Charlotte for at least 24-48 hours. A mask is an option for us but when she's already 'feeling like she's on fire' a mask isn't the best option. So please just be mindful of that when visiting or seeing us somewhere.

As of today I am opening another preorder of shirts. You can cashapp me or I can meet you for cash. Same goes for bracelets. Just let me know if that's something you want to do and we can get it together. 😊

I appreciate all of you and your support in whatever form that has been. Please don't stop praying for us as we navigate this and continue to kick cancer's booty! 🩶🎗️🩶