Update: Kieara had her steroid treatment yesterday, but she won’t be able to start Rituximab until we get back some bloodwork results from today. We have a follow-up next Thursday, and once everything’s cleared, her infusion will be scheduled. We’re still waiting for the results of her spinal tap to determine the cause of the autoimmune disease that has affected her brain tissue. Right now, she’s still experiencing vision issues, which will need to improve before she can return to her normal activities. Unfortunately, this condition will have a lifelong impact. They want to put her on stronger medications, but those aren’t FDA-approved for kids under 18.  

We are overwhelmed with the thoughtfulness of everyone! Thank you for the loads of love, support and prayers during Kiearas Journey