As some of you know, Jason's health has been declining for the last few months.  Last fall, a newer tumor became worrisome, he underwent full brain radiation in late October with the hopes that it would slow down the growth.  He had a scan in January that was promising, and he finally started doing immune therapy, KeyTruda, in late February after months of battling with our insurance.  In March he started noticing that his eyesight was deteriorating, so he went in for another scan and there was growth this time.  His doctor added oral chemotherapy to the regimen, in hopes that it would help to slow the growth down.  I also reached out to see if treatment overseas in Germany could offer something different than here in the US, but unfortunately, that did not pan out the way we had hoped.  He continued to have issues with his eyesight and increased headaches, and underwent another MRI in May.  This showed increased growth yet again even with the two treatments.  

With no other options for treatment, we made the very hard decision to put Jason on hospice.  

With hospice in place we have been managing his pain and symptoms.  He is more comfortable now which is the overall goal.  Just within the last few days he has started sleeping more and more during the day.  He does get a confused at times, mostly with what is going on for the day or what day it is.  He asks frequently what game we have for that night.  

Our community of friends and family have been so amazing during this hard time.  Most of you have been on this journey with us for the last 10 years.  I know many of you are at a loss on how to help and want to do something.  I am not great at asking. I appreciate everything and the love that you have shown the kids and I.  We are doing our best to keep things light, remembering, and having some laughs too.  Eli and Blair are rockstars, I am in awe of thier strength everyday. I can hardly imagine going through what they are at 16 and 14, let alone what they have delt with for the past 10 years, they are doing it with grace.  Eli has become my helper in getting Jason to and from the bed, Jason refers to him lovingly as the "big strong boy" and I can tell he feels a lot more stable with Eli at his side.  Apprently, I am too short to make him feel solid on his feet.  Blair helps by getting things I need for Jason, like little snacks and will also sneak into the room to be by him as a comfort. 

I will try to update you all hear as things start to progress.  He is still up to seeing a few people a day for very short periods of time if anyone is interested. Evenings seem to be best. If you would like to do so please reach out to me directly, he is not checking his phone as much.  Also just putting a card in the mail or sending a text is amazing, I read all your kind words to Jason.  If writing isn't your thing a short video clip sent to his phone or mine works also.  I will make sure that he is seeing those. 

I know many of you have asked how to help, I hope this site can help to naviagate things.  It seems like our needs are changing daily and I really don't know what we might need down the road. But having somethings in place where I don't have to worry takes a lot of stress off of me. 

The Support Registry was just created.

You can see all support opportunities (money, meals, and more) in a single, easy to use experience. As needs change overtime, so does the Support Registry.

- Follow for Updates
- Lend a Hand
- Send a Meal
- Give Money
- Spread the Word, and more.

Thank you for your support!